I am the only person in charge of my son who has a medical condition that requires constant monitoring, he has chronic diabetes and needs some help to move around and go to the bathroom. I had been working from home since the pandemic, but now my boss needs me in the office. First, I was able to have a home nurse through insurance, but only for a few hours, and I must work 8 hours a day plus 2 for transportation.

Finding a place where they take care of my son’s health and at the same time help him in his teaching life has been very difficult, not all states allow Prescribed Pediatric Extended Care (PPEC), fortunately in Florida it does. So, I was able to talk to my boss and move to a bank branch in Florida so I could work and not lose my seniority.

It has been a very difficult stage, not only for me, but especially for Lucas, who has had to change his environment, friends and others. And because of the health insurance, it has been like starting over.

Fortunately, we are now calm, we have already been able to relocate and the PPEC staff helped us a lot throughout the process of accepting medical insurance.

That is why parents of children with special medical needs need a lot of help and, above all, understanding from all labor and public health institutions.